Rare Disease Day at A.I. duPont Hospital for Children

Home educators are hyper diverse. Each family has its own reasons for choosing to take full ownership of their child(ren)’s education. Within multi-child homes, there are varieties of reasons for choosing the lifestyle, or not choosing it as some siblings attend brick-and-mortar schools. Temporally, the reasons may change as children and family dynamics grow.

My personal journey evolved from not knowing the words “unschooling” or “deschooling” to being a cheerleader of these approaches.

Illness can be one of the saddest reasons a family chooses to home educate. Not only do these families bear the burden of a child with compromised health, but they often take on the responsibility of educating that child. It was a world I hardly knew about before joining the home ed community.

Rare diseases are an extra burden as families have to navigate uncharted territories, at home and in health care.

Today will be a learning experience for us. We will learn humility. We will learn about pain. We will learn about how blessed we are for the health we have. We will learn hope. We will learn about the strength of children and families and the human soul.

The most important learning is uncomfortable. It must kill old beliefs and renew them like the Phoenix from the ashes.

God bless and thank you for reading,

Jason